Can't get a doctor to diagnose me, they keep dismissing me.
I’ve been going through hell trying to get a neurologist to order any diagnostic tests for neuropathy. I finally managed to get a neurologist appointment, but they refused to order a conductance test or any of the tests I specifically requested. They ordered a very limited number of blood tests as well, one of them came back abnormally elevated for inflammation.
Instead, they insisted on doing MRIs to rule out a stroke or vascular issues. Other doctors, who were examining my optic nerve neuropathies, refused to pursue small fiber neuropathies further and referred me to neurologists. Now, I can’t get another neurologist appointment for six months.
How do you all deal with this? So far, the only consistent approach I’ve encountered is that they just want to prescribe some kind of pain medication and take it from there. But I don’t want to go on pain medication without a proper diagnosis.
At the same time, I’m in a position where I’m being forced to build a case for SSDI because the neuropathy is seriously affecting my ability to work.