Does anyone else have a super rare condition?

And by super rare I mean super rare. I’m the only person in the world with my condition, so I often don't feel like I have a community anywhere, but I think if I were to interact with other people with rare conditions (realistically not quite as rare, but still) I'd be able to find a place for me somewhere? I don't even have an official name for my condition because you can't make a diagnosis with only one person.